For questions, call 1-800-951-3889, Mon-Fri, 8 am to 6 pm ET

Resources and support

Meet a Patient Support Manager

Explore PK deficiency resources to help communicate with your healthcare team and others

Resources and support

Meet a Patient Support Manager

Explore PK deficiency resources to help communicate with your healthcare team and others

Agios Understanding PK Deficiency Brochure

Agios Understanding
PK Deficiency Brochure

Learn about PK deficiency and explore tools to help you work closely with your doctor to proactively manage your condition.

DOWNLOAD BROCHURE
Agios PK Deficiency Doctor Discussion Guide

Agios PK Deficiency
Doctor Discussion Guide

Keep track of goals, obstacles, and questions to help you advocate for yourself and come up with the right management plan with your healthcare team.

DOWNLOAD GUIDE
MyPKD App

MyPKD App

A mobile web app where you can track your daily symptoms, save reports, and share updates with your healthcare team and others.

MAKE AN ACCOUNT
PK Deficiency Fast Facts Brochure

Fast Facts Brochure

Download the Fast Facts brochure for additional in-depth information about PK deficiency.

DOWNLOAD BROCHURE

ONLINE PK DEFICIENCY SUPPORT

Learn how the communities below can offer support as you navigate your journey with rare disease.

Stay informed and up to date about the latest in PK deficiency

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