For questions, call 1-800-951-3889, Mon-Fri, 8 am to 6 pm ET
Our PSMs act as your ally to deliver custom disease education and support.
It’s been so transforming to be a part of the myAgios program and having the guidance of a Patient Support Manager to help navigate through PK deficiency.
Jill
Enrolled in myAgios Patient Support Services
Individuals featured were paid by Agios for their participation.
Tailored support
Everyone’s experience with PK deficiency is unique. Our PSMs will listen to understand patients’ and caregivers’ specific needs related to living with or caring for someone with the condition. PSMs will work with patients and caregivers over time to deliver customized education and support, such as:
What causes PK deficiency
Emotional support
Tips about nutrition, lifestyle, and exercise
Health insurance navigation
Check out a podcast that’s tailored for the PK deficiency community
Listen to the podcast
Educational resources
Whether a patient is newly diagnosed or has been living with PK deficiency for a while, PSMs will share resources that can help patients and caregivers better understand the disease and communicate effectively, including resources that:
Provide an overview of PK deficiency
Explain the latest research about the disease
Help patients and caregivers prepare for their next discussion with healthcare providers and related professionals
See the resources you can start using now
Go to resources
Community connections
Living with a rare disease can mean never having met someone else with the same condition. PSMs can provide opportunities to connect with other patients and for caregivers to share their experiences with PK deficiency through:
Educational events
Providing notifications about social media communities and advocacy groups
Register for an upcoming webinar to hear from experts and virtually connect with the community
Register for a webinarThe purpose of this program is NOT to offer medical or treatment-related advice. For these types of questions, contact your healthcare professional.
Register to start receiving disease education and information from a PSM
